Watch ans Sweat (Wait) #26

Yesterday I had another checkup and once again all is clear with no sign of tumour regrowth. Soon it will be eleven years tumour-free. See the score card below.

OLIGO SCORE CARD
Birthday:	7/8/54
Event	Date		Tumour-free years
First diagnosed after craniotomy #1	1-Nov-93		39
First recurrance and Craniotomy #2	1-Nov-06		13
MRI showing signs of progression	1-Jan-09		2.2
Second Recurrance and Craniotomy #3	29-May-09		2.2
Completed Radiation Therapy	28-Aug-09		0.2
Started Chemotherapy with Temozolomide	12-Apr-10		0.8
Completed 12 mth chemotherapy	1-Apr-11		1.8
Watch and Sweat(wait) #1	22-Aug-12		3.2
Watch and Sweat(wait) #2	24-Oct-12		3.3
Watch and Sweat(wait) #3	29-Jan-13		3.7
Watch and Sweat(wait) #4	27-May-13		3.9
Watch and Sweat(wait) #5	3-Sep-13		4.3
Watch and Sweat(wait) #6	3-Dec-13		4.5
Watch and Sweat(wait) #7	4-Mar-14		4.8
Watch and Sweat(wait) #8	3-Jun-14		5.0
Watch and Sweat(wait) #9	2-Sep-14		5.3
Watch and Sweat(wait) #10	9-Dec-14		5.5
Watch and Sweat(wait) #11	20-Apr-15		5.8
Watch and Sweat(wait) #12	20-Jul-15		6.1
Watch and Sweat(wait) #13	29-Oct-15		6.4
Watch and Sweat(wait) #14	21-Jan-16		6.6
Watch and Sweat(wait) #15	12-May-16		6.9
Watch and Sweat(wait) #16	5-Sep-16		7.3
Watch and Sweat(wait) #17	10-Jan-17		7.6
Watch and Sweat(wait) #18	9-May-17		7.9
Watch and Sweat(wait) #19	5-Sep-17		8.3
Watch and Sweat(wait) #20	12-Dec-17		8.5
Watch and Sweat(wait) #21	16-Apr-18		8.8
Watch and Sweat(wait) #22	13-Sep-18		9.3
Watch and Sweat(wait) #23	8-Jan-19		9.6
Watch and Sweat(wait) #24	7-May-19		9.9
Watch and Sweat(wait) #25	3-Dec-19		10.5
Watch and Sweat(wait) #26	21-Apr-20		10.8

Watch and Sweat (wait) #25

 

OLIGO SCORE CARD
Birthday:	7/8/54
Event	Date		Tumour-free years
First diagnosed after craniotomy #1	1-Nov-93		39
First recurrance and Craniotomy #2	1-Nov-06		13
MRI showing signs of progression	1-Jan-09		2.2
Second Recurrance and Craniotomy #3	29-May-09		2.2
Completed Radiation Therapy	28-Aug-09		0.2
Started Chemotherapy with Temozolomide	12-Apr-10		0.8
Completed 12 mth chemotherapy	1-Apr-11		1.8
Watch and Sweat(wait) #1	22-Aug-12		3.2
Watch and Sweat(wait) #2	24-Oct-12		3.3
Watch and Sweat(wait) #3	29-Jan-13		3.7
Watch and Sweat(wait) #4	27-May-13		3.9
Watch and Sweat(wait) #5	3-Sep-13		4.3
Watch and Sweat(wait) #6	3-Dec-13		4.5
Watch and Sweat(wait) #7	4-Mar-14		4.8
Watch and Sweat(wait) #8	3-Jun-14		5.0
Watch and Sweat(wait) #9	2-Sep-14		5.3
Watch and Sweat(wait) #10	9-Dec-14		5.5
Watch and Sweat(wait) #11	20-Apr-15		5.8
Watch and Sweat(wait) #12	20-Jul-15		6.1
Watch and Sweat(wait) #13	29-Oct-15		6.4
Watch and Sweat(wait) #14	21-Jan-16		6.6
Watch and Sweat(wait) #15	12-May-16		6.9
Watch and Sweat(wait) #16	5-Sep-16		7.3
Watch and Sweat(wait) #17	10-Jan-17		7.6
Watch and Sweat(wait) #18	9-May-17		7.9
Watch and Sweat(wait) #19	5-Sep-17		8.3
Watch and Sweat(wait) #20	12-Dec-17		8.5
Watch and Sweat(wait) #21	16-Apr-18		8.8
Watch and Sweat(wait) #22	13-Sep-18		9.3
Watch and Sweat(wait) #23	8-Jan-19		9.6
Watch and Sweat(wait) #24	7-May-19		9.9
Watch and Sweat(wait) #25	3-Dec-19		10.5

Another four monthly MRI scan and checkup has come up clear! Dr Walker noted that it is now ten and a half years since my last surgery and thinks that I am doing better than most. However, I went 13 years after I was first diagnosed and had a recurrence so I not getting too carried away about it.

Bridge to Brisbane 2019 - The Good, The Bad and The Ugly

In the interest of being frank and honest on this blog I have to say that my latest attempt to run Brisbane's biggest Fun Run, the 10Km (6 Mi) Bridge to Brisbane, was an unmitigated disaster. Having turned 65 in August I was determined to prove that I could still do this. While I did manage to finish, it was only by taking walking rests every kilometre and my time of 1:56:31 can only be described as embarrassing. I have been unable to get rid of excess fat on my belly over the last few years and that has caused me to adopt a dreadful running style whereby I lean back to counter-balance my fat belly. In the "run" this position strained my lower back and by the 6Km mark I was in quite a bit of pain. As if that was not enough, I also jarred my right knee on a downhill section and I started to lean to the left to protect my right knee. So then I was leaning back AND to the left! What a joke this old man was. The photos illustrate the Good, the Bad and the Ugly that was my Bridge to Brisbane 2019.

THE GOOD

Not looking too bad here although the Lady behind seems to think I'm pretty funny!

 

Entering the Finish shute and happy it was all over

 THE BAD

Looking pretty weird as I approach the finish

Absolutely Knackered as I cross the finish line

THE UGLY

OMG!

Here comes old leaning tower of Pisa. Will he topple over before crossing the finish line?

Watch and Sweat (wait) #24

Another regular check-up came up clear today. Phew! That makes ten years tumour-free. But I've been here before after the first surgery, and that time it grew back after 13 years. So I am not claiming a cure just yet.

OLIGO SCORE CARD
Birthday:	7/8/54
Event	Date		Tumour-free years
First diagnosed after craniotomy #1	1-Nov-93		39
First recurrance and Craniotomy #2	1-Nov-06		13
MRI showing signs of progression	1-Jan-09		2.2
Second Recurrance and Craniotomy #3	29-May-09		2.2
Completed Radiation Therapy	28-Aug-09		0.2
Started Chemotherapy with Temozolomide	12-Apr-10		0.8
Completed 12 mth chemotherapy	1-Apr-11		1.8
Watch and Sweat(wait) #1	22-Aug-12		3.2
Watch and Sweat(wait) #2	24-Oct-12		3.3
Watch and Sweat(wait) #3	29-Jan-13		3.7
Watch and Sweat(wait) #4	27-May-13		3.9
Watch and Sweat(wait) #5	3-Sep-13		4.3
Watch and Sweat(wait) #6	3-Dec-13		4.5
Watch and Sweat(wait) #7	4-Mar-14		4.8
Watch and Sweat(wait) #8	3-Jun-14		5.0
Watch and Sweat(wait) #9	2-Sep-14		5.3
Watch and Sweat(wait) #10	9-Dec-14		5.5
Watch and Sweat(wait) #11	20-Apr-15		5.8
Watch and Sweat(wait) #12	20-Jul-15		6.1
Watch and Sweat(wait) #13	29-Oct-15		6.4
Watch and Sweat(wait) #14	21-Jan-16		6.6
Watch and Sweat(wait) #15	12-May-16		6.9
Watch and Sweat(wait) #16	5-Sep-16		7.3
Watch and Sweat(wait) #17	10-Jan-17		7.6
Watch and Sweat(wait) #18	9-May-17		7.9
Watch and Sweat(wait) #19	5-Sep-17		8.3
Watch and Sweat(wait) #20	12-Dec-17		8.5
Watch and Sweat(wait) #21	16-Apr-18		8.8
Watch and Sweat(wait) #22	13-Sep-18		9.3
Watch and Sweat(wait) #23	8-Jan-19		9.6
Watch and Sweat(wait) #24	7-May-19		9.9

Watch and Sweat (wait) #23

For the twenty third time, On my regular checkup Dr Walker has assured me that there is no sign of any regrowth.See my oligo scorecard below for details.

OLIGO SCORE CARD
Birthday:	7/8/54
Event	Date		Tumour-free years
First diagnosed after craniotomy #1	1-Nov-93		39
First recurrance and Craniotomy #2	1-Nov-06		13
MRI showing signs of progression	1-Jan-09		2.2
Second Recurrance and Craniotomy #3	29-May-09		2.2
Completed Radiation Therapy	28-Aug-09		0.2
Started Chemotherapy with Temozolomide	12-Apr-10		0.8
Completed 12 mth chemotherapy	1-Apr-11		1.8
Watch and Sweat(wait) #1	22-Aug-12		3.2
Watch and Sweat(wait) #2	24-Oct-12		3.3
Watch and Sweat(wait) #3	29-Jan-13		3.7
Watch and Sweat(wait) #4	27-May-13		3.9
Watch and Sweat(wait) #5	3-Sep-13		4.3
Watch and Sweat(wait) #6	3-Dec-13		4.5
Watch and Sweat(wait) #7	4-Mar-14		4.8
Watch and Sweat(wait) #8	3-Jun-14		5.0
Watch and Sweat(wait) #9	2-Sep-14		5.3
Watch and Sweat(wait) #10	9-Dec-14		5.5
Watch and Sweat(wait) #11	20-Apr-15		5.8
Watch and Sweat(wait) #12	20-Jul-15		6.1
Watch and Sweat(wait) #13	29-Oct-15		6.4
Watch and Sweat(wait) #14	21-Jan-16		6.6
Watch and Sweat(wait) #15	12-May-16		6.9
Watch and Sweat(wait) #16	5-Sep-16		7.3
Watch and Sweat(wait) #17	10-Jan-17		7.6
Watch and Sweat(wait) #18	9-May-17		7.9
Watch and Sweat(wait) #19	5-Sep-17		8.3
Watch and Sweat(wait) #20	12-Dec-17		8.5
Watch and Sweat(wait) #21	16-Apr-18		8.8
Watch and Sweat(wait) #22	13-Sep-18		9.3
Watch and Sweat(wait) #23	8-Jan-19		9.6

Watch and Sweat (wait) #22

After another MRI scan Dr Walker continues to be very happy that there is no sign of progression and thinks that I am doing very well.

On the other hand, I am finding that what brain I have left seems to become more dysfunctional and forgetful with each passing day! Yes I know I am 64 now, but it's very annoying.

OLIGO SCORE CARD
Birthday:	7/8/54
Event	Date		Tumour-free years
First diagnosed after craniotomy #1	1-Nov-93		39
First recurrance and Craniotomy #2	1-Nov-06		13
MRI showing signs of progression	1-Jan-09		2.2
Second Recurrance and Craniotomy #3	29-May-09		2.2
Completed Radiation Therapy	28-Aug-09		0.2
Started Chemotherapy with Temozolomide	12-Apr-10		0.8
Completed 12 mth chemotherapy	1-Apr-11		1.8
Watch and Sweat(wait) #1	22-Aug-12		3.2
Watch and Sweat(wait) #2	24-Oct-12		3.3
Watch and Sweat(wait) #3	29-Jan-13		3.7
Watch and Sweat(wait) #4	27-May-13		3.9
Watch and Sweat(wait) #5	3-Sep-13		4.3
Watch and Sweat(wait) #6	3-Dec-13		4.5
Watch and Sweat(wait) #7	4-Mar-14		4.8
Watch and Sweat(wait) #8	3-Jun-14		5.0
Watch and Sweat(wait) #9	2-Sep-14		5.3
Watch and Sweat(wait) #10	9-Dec-14		5.5
Watch and Sweat(wait) #11	20-Apr-15		5.8
Watch and Sweat(wait) #12	20-Jul-15		6.1
Watch and Sweat(wait) #13	29-Oct-15		6.4
Watch and Sweat(wait) #14	21-Jan-16		6.6
Watch and Sweat(wait) #15	12-May-16		6.9
Watch and Sweat(wait) #16	5-Sep-16		7.3
Watch and Sweat(wait) #17	10-Jan-17		7.6
Watch and Sweat(wait) #18	9-May-17		7.9
Watch and Sweat(wait) #19	5-Sep-17		8.3
Watch and Sweat(wait) #20	12-Dec-17		8.5
Watch and Sweat(wait) #21	16-Apr-18		8.8
Watch and Sweat(wait) #22	13-Sep-18		9.3

Watch and Sweat(wait) #21

Yesterday I had another MRI and review with my surgeon Dr David Walker. Everything still looks good with no sign of any changes. Next month will be nine years since my last surgery so I'm very thankful that it's going so well this time. Hopefully it will stay that way.

OLIGO SCORE CARD
Birthday:	7/8/54
Event	Date		Tumour-free years
First diagnosed after craniotomy #1	1-Nov-93		39
First recurrance and Craniotomy #2	1-Nov-06		13
MRI showing signs of progression	1-Jan-09		2.2
Second Recurrance and Craniotomy #3	29-May-09		2.2
Completed Radiation Therapy	28-Aug-09		0.2
Started Chemotherapy with Temozolomide	12-Apr-10		0.8
Completed 12 mth chemotherapy	1-Apr-11		1.8
Watch and Sweat(wait) #1	22-Aug-12		3.2
Watch and Sweat(wait) #2	24-Oct-12		3.3
Watch and Sweat(wait) #3	29-Jan-13		3.7
Watch and Sweat(wait) #4	27-May-13		3.9
Watch and Sweat(wait) #5	3-Sep-13		4.3
Watch and Sweat(wait) #6	3-Dec-13		4.5
Watch and Sweat(wait) #7	4-Mar-14		4.8
Watch and Sweat(wait) #8	3-Jun-14		5.0
Watch and Sweat(wait) #9	2-Sep-14		5.3
Watch and Sweat(wait) #10	9-Dec-14		5.5
Watch and Sweat(wait) #11	20-Apr-15		5.8
Watch and Sweat(wait) #12	20-Jul-15		6.1
Watch and Sweat(wait) #13	29-Oct-15		6.4
Watch and Sweat(wait) #14	21-Jan-16		6.6
Watch and Sweat(wait) #15	12-May-16		6.9
Watch and Sweat(wait) #16	5-Sep-16		7.3
Watch and Sweat(wait) #17	10-Jan-17		7.6
Watch and Sweat(wait) #18	9-May-17		7.9
Watch and Sweat(wait) #19	5-Sep-17		8.3
Watch and Sweat(wait) #20	12-Dec-17		8.5
Watch and Sweat(wait) #21	16-Apr-18		8.8