Wednesday, September 4, 2013

Another Quarterly Watch and Sweat(Wait) comes up all clear - now 4.3 years tumour-free

Good News yesterday when the latest MRI scan showed no signs of any re-growth. My Oligo score-card is now showing that I am up to 4.3 years tumour-free.


OLIGO SCORE CARD
Birthday: 7/08/54
Event Date Tumour-free years
First diagnosed after craniotomy #1 1/11/93 39
First recurrance and Craniotomy #2 1/11/06 13
MRI showing signs of progression 1-Jan-09 2.2
Second Recurrance and Craniotomy #3 29-May-09 2.2
Completed Radiation Therapy 28-Aug-09 0.2
Started Chemotherapy with Temozolomide 12-Apr-10 0.8
Completed 12 mth chemotherapy 1-Apr-11 1.8
Watch and Sweat(wait) #1 22-Aug-12 3.2
Watch and Sweat(wait) #2 24-Oct-12 3.3
Watch and Sweat(wait) #3 29-Jan-13 3.7
Watch and Sweat(wait) #4 27-May-13 3.9
Watch and Sweat(wait) #5 3-Sep-13 4.3

Tuesday, September 3, 2013

Training to go Trekking in Nepal

L-R:Me, Cheryl, Kev and Karen
Cheryl and I had 10Kg packs on our backs while we trained on the slopes of Mt Gravatt on Sunday in preparation for our trip to Nepal with our good bushwalking friends Karen and Kev McKlosky.

In two and  half weeks time we are flying to Singapore on the first leg of our journey to Kathmandu, Nepal where we will be meeting up with Karen and Kev before setting off on a 25 day trek of the Manaslu Circuit(including a side-trip to the remote Tsum Valley near the border with Tibet) supported by Global Adventure Trekking, Kathmandu.

Tuesday, August 20, 2013

Alternative Medicine


















When I tell people that I have a benign brain tumour it is amazing how many immediately assume that I will be seeking out the latest alternative cancer cure. Be it vitamins, herbs, juice diets or some other therapy, the fact that I don't even have Cancer does not seem to matter. There usually follows some anecdotal story about "Uncle Fred" who used this therapy and was miraculously cured after the [evil] Doctors told him there was nothing more they could do for him.The anecdote is meant to be evidence of the effectiveness of the cure and if I start asking more questions about Uncle Fred's specific case it usually does not take long before I am accused of being Closed Minded. I think alternative therapies would only be considered as a last resort if the patient had tried everything that evidence-based medicine had to offer. It certainly would not be a first option for me.

Australian comedian Tim Minchin sums it up beautifully in his hilarious YouTube video:

http://www.youtube.com/watch?v=HhGuXCuDb1U

Monday, May 27, 2013

Quarterly Watch and Wait(Sweat) shows I'm still on top of it!


At the Latest Watch and Wait(Sweat) checkup today Dr Walker noted that there are no signs of any regrowth.

So that means that I am still on top of this tumour. Yeeehaaaaa!!!

Tuesday, January 29, 2013

First Watch and Sweat for 2013 - All Good!

Got the results of my latest regular MRI checkup today and Dr Walker says it all looks good with no sign of re-growth. That's what we like to hear!!!

Wednesday, October 24, 2012

Latest Watch and Wait (Sweat) came up clear.








Last week I had another regular MRI scan as part of my three monthly checkup regime and I am pleased to report that it came up clear once again. Phew!!!

Thursday, August 23, 2012

Participating in The Ride to Conquer Cancer

Waiting for the start(I'm in there somewhere up the back
wearing a yellow jersey)



On Saturday morning as I stood astride my bike at the start line with the other 1,511 riders I was very conscious that I was only there as a result of my donors’ generosity, their concern and their caring enough to do something practical about this terrible disease called cancer. And when it was announced that the event had already raised $5.2M to continue the essential cancer research work being conducted at QIMR, I knew that we (both riders and donors) were part of something very big and very worthwhile.

The first day was certainly a slog battling a headwind much of the way with some agonisingly long hills where you would think you had reached the crest only to find it to be a false summit with another kilometre of hill stretching out ahead! Fortunately, at those times your fellow riders would yell some words of encouragement and you would keep working away. When the going got tough you would invariably see a bike up ahead with a yellow flag flapping around on the end of a long pole indicating that rider was a cancer survivor and that would certainly inspire you. What was especially poignant was to see a rider with a rose on their bike to say they were riding in honour of someone who had lost their fight against cancer. I saw far too many roses on bikes on the first day.

The whole event was exceptionally well organised and an army of volunteer helpers was there to welcome the tired and saddle sore riders when we eventually rolled into the Logan Inlet campsite at Wivenhoe dam 110Km from the University of Queensland where we started. My tent buddy turned out to be Anthony Smith who lives in Gladstone and made the journey to Brisbane with two of his mates who also did the ride. There were a couple of complementary beers waiting for us in a huge marquee so I joined the Gladstone boys to celebrate a successful first day. After a hearty meal of chicken pie, potatoes and salad followed by a big dessert we heard from Professor Frank Gannon - Director and CEO of QIMR. Prof Gannon explained how the funds from this event will be directed to cancer research only and will not used for other research taking place at the Institute. He also asked us to think about the ride as a metaphor for the life of a person with cancer. Just as we riders might dislike riding up a steep hill we were not expecting but still have to work our way over it, the cancer patient will have to deal with unexpected setbacks and gets no choice in the matter.

It was freezing cold at the dam on Sunday morning when we had to coax our weary muscles into action again to ascend a steep hill straight away to get out of the campsite. The wind had died down overnight and day two was promising to be a beautiful day. After a couple of kilometres the riders had strung out into a long line as we ascended yet another long hill when suddenly up ahead a huge adult Grey Kangaroo burst out of the bush and hopped across the road. It was a magnificent sight, even if it did scare the living daylights out of the riders up ahead of me. On day two we discovered that those long hills from the previous day were short and steep when approached from the opposite direction! Luckily there was a rest stop with food, water and toilets organised every 25-30 Kilometres which broke up the ride into four legs. This was fortunate as it allowed us to just focus on completing one leg at a time. I have to say that the return journey on Sunday was one of the hardest things I have ever done and when on the last leg, I encountered another first gear hill I was sorely tempted to get off and wait for the sweep bus to collect me. However, the words of the good Professor from the night before were still in my mind and I had to just dig a bit deeper and keep going. After all, cancer patients don’t get the option to get off and wait for an easy way out. Of course, I made it to the finish line in the end and did not let you down my dear donors. So we can all (riders and donors) pat ourselves on the back and say: “we did it together”!